We have finally had the long awaited Low Vision appointment with Dr. Primo in Atlanta.
Seeing Through Lynk's Eyes
This is a blog all about my 6-year old son Lynk. He was diagnosed with Stargardt's Disease, an inherited retinal disease that causes macular dystrophy. The disease has left him legally blind, and this is his story.
Wednesday, January 4, 2017
Wednesday, December 14, 2016
One-on-One Aide, ENT Visit
So Lynk has this problem where he snorts. Continually. It drives everyone bonkers. We thought it was allergies. Allergy medications didn't help one bit. We took him in to have him tested for allergies. This kid isn't allergic to anything. So we went to go visit the ENT. His best guess is simply that Lynk has some type of irritant in his nasal passages that's causing irritation, inflammation, and a post-nasal drip, making Lynk feel the need to snort.
Genetic Testing Results!!!!
There has been a lot going on over the past several weeks. And I should have updated the blog sooner, but you know how things go. You get busy and end up neglecting things you shouldn't have. For me, I got busy making Christmas gifts. 90% of the gifts we are giving this year are hand made! It's been time consuming, which is why I sadly neglected this blog. Hopefully this post helps make up for it.
Monday, November 14, 2016
Lynk and School
McBride Elementary has been absolutely amazing to Lynk. The Special Ed (SPED) team has been working to get Lynk the accommodations he needs, even though he hasn't been evaluated by a Low Vision doctor yet.